Emotions after receiving the diagnosis of holoprosencephaly
From Holoprosencephaly
Whether you learn of your child's disability all at once or in bits and pieces, nothing can prepare you for the moment when the reality of his condition sinks in. It is a very painful, difficult moment.
You may be overwhelmed by intense rage, rejection, guilt or grief. One moment you may feel like hugging your child and never letting go, and the next like running away. You may also be flooded with so many emotions at once that you aren't quite sure what you are feeling. This may even be augmented if you were told your child would not survive as there is an underlying emotion of fear about whether your child will die or live another day. These responses are all perfectly normal reactions to the news that your child has holoprosencephaly. You have just learned that your life - and your child's life - will never be the same. How could any reaction be too extreme? You, like all parents of children with severe disabilities, will pass through a range of emotions in your struggle toward acceptance of your child's disability.
Although it may seem incredible to you right now, it is possible to come to grips with these feelings - on your own terms, in your own time. Most parents do.
Read through some of the articles in this section to learn about some of the emotions you may be feeling and how to deal with them.
Source: Children with Cerebral Palsy
