Emily Rose Hicks
From Holoprosencephaly
Emily is three years old with sl-hpe. She is very playful and loves interacting with other people. She is unable to sit, walk, crawl, eat by mouth, and talk. Despite all that she is very pleasant and loves to be read to and loves being sung to. She is very aware of her surroundings and I feel like she is a three year old stuck in a 3month old body. She has reflux which is one of our biggest problems. She has a GJ-tube to help what she refluxes. She also has microcephaly which she has been on her own head chart since she was born. Her head has measured 17 1/2 inches for the last two years. She is my angel, she is all that is positive in the world. I love to just look at my beautiful little girl. I am a single parent living with my parents. Me and Emily take care of my mother. We are all happy living life! Andrea Hicks Emily Fonsemorti
