Ayden Johnson
From Holoprosencephaly
Ayden has Semi-Lobar Holoprosencephaly. Ayden for the most part wakes everyday at 8am and he feeds and takes his ddavp and klonzapam. He loves when we play with him. He likes his walker and his toy telephone right now he is just learning to hold his toys. I know all the children are different so some will learn faster than others but they are all so special. I think the only thing he really dislikes is when he isn't held and talked to when he is awake. Lately he don't want to nap I think he feels he might miss something.
We live in Norfolk Virginia and my husband is in the Navy. Ayden has a 4 year old sister named Freya she is getting ready to go to preschool soon. I don't work so I stay at home with the kids and take care of the house. Ayden gets in home therapy here on Wednesdays at 11 and he always looks forward to it he is such a people person.
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